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  • This is the organisation responsible for running or supporting the data access request process, as well as publishing and maintaining the metadata. 

  • In most cases this will be the same as the HDR UK Organisation (Hub or Alliance Member). 

  • However, in some cases this will be different i.e. Tissue Directory are an HDR UK Gateway organisation but coordinate activities across a number of data publishers i.e. Cambridge Blood and Stem Cell Biobank. 

  • Information about each organisation onboarding and curating metadata for a given dataset must be provided, at registration, including:

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